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Lobbying disclosures · Lobbying report

RARE: second_quarter 2026 lobbying report

Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD) Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD) Monitoring FDA user fee regulation, including priority review vo

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Became public
Jul 20, 2026, 3:57 PM EDT
Event / period date
Not stated
Collected
Nov 9, 2026, 7:09 AM EST

Why this is connected

Exact legal-name match: Ultragenyx Pharmaceutical Inc. (https://www.sec.gov/Archives/edgar/data/1515673/).

Reported lobbying amounts

Income: $60,000.00

These are different reporting measures. They are not added together or treated as spending on one particular bill.

Source evidence

Read the source excerpt or record
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Anna Eshoo; Congressional Liaison - FDA","new":false},{"lobbyist":{"id":93714,"prefix":null,"prefix_display":null,"first_name":"KEENAN","nickname":null,"middle_name":null,"last_name":"AUSTIN REED","suffix":null,"suffix_display":null},"covered_position":"Chief of Staff, Rep. Donald McEachin; Deputy Chief of Staff, Rep. Frederica S. Wilson","new":false},{"lobbyist":{"id":145638,"prefix":null,"prefix_display":null,"first_name":"SHAYNE","nickname":null,"middle_name":null,"last_name":"WOODS","suffix":null,"suffix_display":null},"covered_position":"Senior Legislative Assistant, Sen. Tim Scott; Senior Policy Advisor, Rep. Gus Bilirakis","new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"GOV","general_issue_code_display":"Government Issues","description":"Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD)","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":145638,"prefix":null,"prefix_display":null,"first_name":"SHAYNE","nickname":null,"middle_name":null,"last_name":"WOODS","suffix":null,"suffix_display":null},"covered_position":"Senior Legislative Assistant, Sen. Tim Scott; Senior Policy Advisor, Rep. Gus Bilirakis","new":false},{"lobbyist":{"id":93714,"prefix":null,"prefix_display":null,"first_name":"KEENAN","nickname":null,"middle_name":null,"last_name":"AUSTIN REED","suffix":null,"suffix_display":null},"covered_position":"Chief of Staff, Rep. Donald McEachin; Deputy Chief of Staff, Rep. Frederica S.Wilson","new":false},{"lobbyist":{"id":150052,"prefix":null,"prefix_display":null,"first_name":"ERIN","nickname":null,"middle_name":null,"last_name":"MENDELSOHN","suffix":null,"suffix_display":null},"covered_position":"LD, Rep. Anna Eshoo; Congressional Liaison - FDA","new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]},{"general_issue_code":"MED","general_issue_code_display":"Medical/Disease Research/Clinical Labs","description":"Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD)","foreign_entity_issues":"","lobbyists":[{"lobbyist":{"id":145638,"prefix":null,"prefix_display":null,"first_name":"SHAYNE","nickname":null,"middle_name":null,"last_name":"WOODS","suffix":null,"suffix_display":null},"covered_position":"Senior Legislative Assistant, Sen. Tim Scott; Senior Policy Advisor, Rep. Gus Bilirakis","new":false},{"lobbyist":{"id":93714,"prefix":null,"prefix_display":null,"first_name":"KEENAN","nickname":null,"middle_name":null,"last_name":"AUSTIN REED","suffix":null,"suffix_display":null},"covered_position":"Chief of Staff, Rep. Donald McEachin; Deputy Chief of Staff, Rep. Frederica S.Wilson","new":false},{"lobbyist":{"id":150052,"prefix":null,"prefix_display":null,"first_name":"ERIN","nickname":null,"middle_name":null,"last_name":"MENDELSOHN","suffix":null,"suffix_display":null},"covered_position":"LD, Rep. Anna Eshoo; Congressional Liaison - FDA","new":false}],"government_entities":[{"id":2,"name":"HOUSE OF REPRESENTATIVES"},{"id":1,"name":"SENATE"}]}],"conviction_disclosures":[],"foreign_entities":[],"affiliated_organizations":[]}

Price change after we could observe it

+3.47% RARE

Adjusted closing prices from Nov 10, 2026 to Nov 11, 2026. SPY changed 1.32% over the same dates. The start is the first available close after both publication and collection. This is a price comparison, not an executed trade, investor profit, or a backtested strategy.

Congressional trading in RARE

These disclosures provide context. Their presence does not establish a link between a trader and the event.

Original documents control. Public records can be amended, and company connections may require interpretation. Nothing here is investment advice.